Sunday, September 25, 2016

My Girls

I'm starting to come to this time in my life that my girls don't need me. I was okay with this, until my 12 decided to go get a life. Now I am missing her like crazy, she's my partner in crime and I miss it. I am so happy that she has friends she'd rather be with because there for a while I was really unsure of how she was gonna be. I didn't want her to be one of those weird antisocial people that want to hurt people (not that she would). Lyndsey is so gentle and kind hearted she's one that gets walked all over easily. Im really trying to teach her to stand her ground, to help those whom can't help themselves and to be the kind of person she would want to be friends with. Luckily we live in a small town and she's gone to school with most of the kids since Pre-k which is amazing, but that is also kind of a bad thing because everyone know everything.
Alice just started kindergarten and is always excited to see me waiting for her after school. IT's really the best feeling in the world. The beginning of her life was so touch and go every milestone she hits is huge for me. Alice was born with AVSD (Atrial Ventricular Septal Defect) which is a fancy talk for she had a big whole in the chambers of her heart. We didn't find out until she was 3 days old and this broke my heart.
https://www.cincinnatichildrens.org/patients/child/encyclopedia/defects/graphicsummaries/avcgs (This is a picture of what is looks like)
We were told there was basically 3 surgeries that they were looking at
1) Because of how complicated her defect was they were possibly transfering us to stanford university for a heart transplant
2) Training her heart to beat the other way. Basically it over a series of surgeries her body would pump it's cirulatory system backwards, this would wear out the heart quicker and she would eventually need a heart transplant
3) They had a cardiology conference they were going to present her case to about 100 different pediatric cardiologist nationwide where they would work together to find a solution.
Option number 3 is the one that ended up winning and on April 14, 2011 My 2 1/2 month old baby girl had open heart surgery and because of complications that happened before her surgery no one expected her to make it through the surgery. We went in for surgery on April 4th, but she ended up having a full code and was placed on life support they waited 10 days and decided well it's now or nothing.
I always tell people expect the worst but pray for the best, I have used this many, many times. If you expect the worse and that doesn't happen that it's golden. That 8hrs was the longest of my life, baby girl came out of it better than anyone expected but since she was so finicky before surgery all we could do was hope and pray which we did.

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