Wednesday, January 25, 2017

All because of a cough......

So Alice went up to Doernbecher today to get her pacer checked and thankfully they found nothing wrong and assured me that her pacer was infact still anchored to where it was supposed to be. So this was good news. Not just great news but the best news I've heard in a while.
While we were waiting to go back and see the doctor Alice had to wear this awesome surgical mask because she has this nasty cough that won't go away. Well this girl was not impressed that she had to wear this mask. It didn't even help that it was Disney Inspired, she just sat there and gave me the evil eye, which was hilarious. She complained that no one else was wearing a mask and didn't want to wear one.
Luckily there was a little baby maybe 2 months old sitting in the waiting room, so I pointed to the baby and said you see that little girl? She's not sick and coughing and we don't want to spread it to her. She said she still didn't want to wear it but she didn't want to get the baby sick either. I appreciated her thoughts and just told her she had to wear it until we leave.
So after waiting, getting her pacemaker interrogated and scheduling another call in for April and getting x-rays it only took us almost 2 hours and that is seriously the quickest we've gotten in and out of that place. I was surprised because we saw 2 different doctors a nurse and got x-rays with no delay. Because of the time it was scheduled 12:30pm we missed the traffic going up and coming home which was amazing. There were a few slow spots which was near St.Anothony's school in Tigard and then there was road work in king city heading out of town.  But nothing that put us back at home by 3:30pm which was amazing. We left home at 10:30 and stopped and had lunch and had a casual leisurely drive up to Doernbecher.
Any way all in all today was a great day, nothing was wrong with her pacer we double checked just to make sure. She's happy, healthy, growing like a weed, she's 3'11" and not even 6 yet.

Tuesday, January 24, 2017

Does this look Bruises?

So we noticed Saturday that where Alice's pacemaker was placed last year kind if looks bruised. We are not sure whats going in with it but she said it didnt hurt when I touched it or when I rubbed it which is good. She hasnt complained at all so I dont want to freak her out but I am seriously freaking out. I cakled her normal pediatritian and decided that because it didnt look funny, and she wasnt complaining it hurt we'd wait until today to get her in. Well the pediatritian is unsure exactly what to do so he calls the pacemaker dr who wants to see the picture so i email it and he wants us to do a care link call which we do every 3 months. We get home from the dr do a care link call in and wait. I take alice to school and when I get home there is a an email saying the dr has forwarded the picture on to the surgeons. THE SURGEONS! I then get a call from the peds cards surgeons and they say they cant really tell from the picture whats going on so they want to see us tomorow where they will send us for xrays and an ultra sound so there maybe a surgery i guess.

Monday, January 23, 2017

Whats next?

Back in November I had my Paragard taken out after almost 6 years. My husband I decided we'd try for a 3rd baby which is kinda funny. He tried and tried and tried for about 5 years for another one and I told him I was so done. I didn't want anymore and about 4 months ago I decided I in fact did want another one. So we started the steps back in November step 1) remove Paragard 2) go on the pill for a few months so I can get my diabetes's all figured out 3) do my papsmear :(.
Step 1 went off without a hitch
Step 2 was OK but after a month on the pill and my periods being weird I decided to go off of it and just pay attention to my ovulation while I worked on my diabetes.
Step 3 happened today and thank god he was quick because well I hate it like I'm sure everyone else in the world does. Well after 30 minutes my exam was done and I was off to get my A1c's and now he wants me to take my blood sugars 4x a day for 2 days to see what meds are appropriate for me to take. Now I'm sitting her on my couch wondering what they hell I'm thinking and doing.....


I'm tired I got up at 4:30 am so I could watch my cousin's baby while she went to a job shadow. I've had 3 giant cups of coffee been to the dr, done the dishes ate my lunch and now I'm sitting on the couch watching Dr.Phil wanting to take a nap, but I can't. I have to go get my kids from school soon and then take my little one to Cheer practice. That's right folks Alice is doing cheer practice. She gets to cheer at a varisty basketball game within the next few weeks and I am beyond excited for her because well she wanted this so bad.

Sunday, January 22, 2017

And she lost her first tooth

1/21/17 Alice lost her first tooth

Technically it's not her first because she has had 3 surgically removed, but this was the first one that she lost herself. She was able to wiggle it loose, feel that it was going to fall out and during a cough it came flying out. I told her that it would come out when she sneezed so I was super close. So the prep for the tooth fairy began. I told her that for the tooth fairy to come her room had to be cleaned because the tooth fairy can't get in there quietly if she can't walk on the floor. So for a better part of an hour her and her almost 13 year old sister cleaned her room so that way she could receive a special visit.
I woke up this morning to an extremely excited almost 6 year old. The tooth fairy left her a $5 bill and $1 gold coin, she totally made bank on her first tooth. She was so excited to wake me up and show me, and then when her daddy came home she was beyond excited to show him. This I think is the best age for kiddo's they are so excited for the littlest things. When she lost her tooth she wanted to call her daddy, so we did and she wanted to make sure that he was happy that she lost her tooth. It's like what's to be happy about loosing a tooth but she wanted everyone to be happy that it happened and not be sad. I mean how cute is that, why would anyone be sad that she lost her tooth?

Interview

So today after weeks of filling out applications and turning in resumes I got an interview with this company that I thought was a good fit for my life. I was told that it was a panel interview, which I have had one before in the past so I was ok with it however this one was different. I was in this interview for 3.5 hrs and was told they would call us all by Tuesday. Well at approx. 2:30pm I received a phone call that I passed the interview process and they wanted me to come in and fill out new hire paperwork. I am really excited that I was chosen to work for this company, However my husband and I are talking alot about me working and having a child that still has medical needs. She' has good days and bad days so sometimes there are no issues but how many jobs allow you to call in 1x a week? Not many, so we've decided that I should stay home for a little bit longer or find something I can do at home between the hrs of 8am and 2pm. Any one have any ideas?

Make A Wish (9/13/16)

We got word last night that Make A Wish Oregon is Granting Alice’s wish to go to DisneyWorld right before Halloween so they get to go trick or treating and to meet the princesses.

Life as we know it......(9/13/16)

Alice was born with a Congenital Heart Defect called Atrial Ventricular Sepal Defect (AVSD) when she was about 2 months old she went in to Doernbecher Children's Hospital for her first Open Heart surgery. Her surgery went well but her heart didn’t start up correctly so she needed a pacemaker, that pacemaker was placed in April 2011 and worked perfectly until January 2016, 5 years! 5 years is all we got before one of the leads fractured and she passed out at school and we were taken by ambulance to Doernbecher which is where we informed that her pacemaker had fractured and she would need a new one. That day they took her back and changed her pacemaker, she healed amazing and we were sent home about 4 days later.
About 3 weeks later we were back at dornbecher for a 14 or 15 day stay because her pacemaker didn’t want to stay put. It actually was trying to break out of the skin so they did 10 days of antibiotics and then they re-did the placement of the pacer and 5 days to heal and then we were home to heal which was amazing.
Right after this happened my oldest had her tonsils and adenoids removed this is her very first surgery, 7 days after the surgery she ended up hemorrhaging and had to be taken back up to doernbecher where they tried to cauterized the hemorrhage but that didn’t work so they had to place 7 stitches in her throat, and she spent the night. This was my January-March!



This post was moved from my old blog to my new one so it's kind of back dated